When Life Gives You Lemons…

Welcome back! If you’re reading this then leaving you on the edge of the cliff in my previous post was successful. Let’s get back to it, shall we?

Growing up, I was always the kid that got sick. It seemed like any bug going around managed to migrate its way into my body. What lasted one or two days for the other kids lasted at least double or triple the about of time it did for anyone else. Anytime I was home sick from school it was always for multiple days. The teachers were good to work with making sure that I got caught up, but it was frustrating and tiresome.

I also have a large history of Multiple Sclerosis…my mom, aunt, and Grandmother. That’s a large load to carry knowing that even though supposedly it isn’t genetic, it seems to run the female side. I always was acutely aware of the possibility of getting a diagnosis and had mentally prepared for it as much as possible.

However three years ago when I got ill, there was nothing to prepare me for that. In a matter of days I went from being the nurse and taking care of people to being the patient full time. This was something that no amount of knowledge and determination could help with.

I had come home from work one day with a splitting headache that was much different than my typical migraine. My head felt like it was going to explode and my whole body hurt. I was running fevers and it was influenza season, so naturally I assumed that was the culprit. The clinic also thought that when I decided to get checked out two days later. Landing in the ER for IV fluids due to what we thought was dehydration proved to be just the beginning of this journey.

My blood pressure was running over 200 for the top number (systolic) and my heart rate was running 120-130. Prior to this I had never, ever had a blood pressure that was high. Generally with dehydration, IV fluids will bring down the blood pressure and heart rates as well. However this time it made things worse. After 2 liters of fluid, I got told to go home and rest

I rested and rested and rested…but it didn’t get better. Life had just handed me a humongous supply of lemons and I didn’t know it yet. Lemonade has never been a favorite of mine and neither are lemons.

What are you supposed to do at that point? Sitting back wasn’t an option but neither was going to work; I was technically a liability. But now what…


Let’s Roll

First off, let me welcome you to the inaugural post for my blog. You could call it the ribbon cutting ceremony of sorts, we’re opening the floodgates. This post is more of an introduction to me and a preview of my journey. Each post will go a little more in depth into my passions, frustrations, and anything else that sounds good that day!

I hope you will join me on this adventure. Some call it life and living, but for the last 3 years my terminology has changed…I now call this simply “surviving.” Getting a rare chronic illness diagnosis with no cure at the age of 29 at that point, has been the biggest roller-coaster ride that I could have ever imagined.

Let me back up a little bit. I’m a Registered Nurse by trade; they always say that if you love what you do then you will never work a day in your life.. Nursing has always run in my blood. It runs through my veins with every beat of my heart. I knew when I was very young that was what I wanted to be when I grew up. My Grandmother was a nurse in World War II. She passed away before I was born, but I have been told by multiple people that I have many of her traits and have the same passion that she did. One of my Great Aunts was also a nurse.

I have worked all areas of the hospital and have been present for the first and last breaths of life as well as the first and last heartbeats of life. I’ve also been there for everything in between. Hospice, Home Health, Intensive Care, Emergency Room, Labor/Delivery, Nursery, Pre and Post Operative, and some floating around mixed with house supervisor were what covered my resume. Oh yeah I forgot to mention, I also helped build an electronic medical record too. Some people accomplish a lot in a short amount of time. I accomplished all of this in seven short years.

Then it all changed one day. My nursing career suddenly became a thing of the past and I had to learn how to be the patient…

I’m going to leave you hanging on a cliff because I know you will come back that way! Don’t worry there is a lot more to my journey. This was just enough to peak your curiosity I hope.

Let’s cut that ribbon, shall we?! Snip, snip…until next time. One day at a time.