I did not intend to leave you hanging on the cliff this long. Time passes by so quickly some days and others a single minute feels like several days.
The previous post was fairly short and this one will more than make up for that…
So I’d just been told that they thought I had cancer. Some of the labs took more than a week to come back. It felt like an eternity to wait, but one by one the results trickled in. Each negative result was a collective sigh by family and friends, but I was still in full “flip out mode.” When they all came back negative, then I finally was able to breathe again.
We still had a mystery on our hands though. Endocrinology continued to run more and more tests. As a nurse, I was looking up each one and finally saw that we basically had exhausted all tests within their specialty. Our first specialist left a little to be desired; later on we ended up requesting records to go to a larger regional facility and I read the progress note, which stated he thought that this was all anxiety…more on this later! We requested a second opinion at another facility in the same town just to get a fresh set of eyes on the case. However the other facility was considered out-of-network with our HMO insurance provider. In return that meant that we had to have a second in-network opinion before we could literally drive 10 minutes across town for another opinion. Yes…insurance, that was something that also was going to be a continuous hurdle along this journey. My second opinion (in-network) yielded a thyroid evaluation because we already knew that I had a nodule from previously. It had changed slightly so we decided to do a biopsy, which came back questionable. When we finally got our “across town” consult approved, they reviewed the biopsy slides and determined that there wasn’t enough of a sample to even give an accurate result. So I got to have a second biopsy done in less than a two week period. This time is came back as suspicious and at that facility it runs a 30% chance of being cancerous. I decided to have the left half of my thyroid removed to rule out any thyroid cancer that could have a similar presentation. My symptoms improved for a whopping three weeks and then returned.
Keep in mind it was May already. This was 5 months into a deep, dark hole with no end in sight. We still couldn’t control my blood pressure or heart rates very well. My flushing was at a point that I was laying on the linoleum floor in our bathroom to try and cool down. I didn’t know where to turn, what to say, or even how to breathe. I just kept hoping and praying that I would wake up one morning and it would all be a thing of the past. All I wanted to do was go back to work and be a nurse instead of the patient.
I was so angry. Why did this happen to me? What did I do wrong? I wanted my life back…the one that didn’t involve pills, blood draws, ER visits, and constant trips to specialists. I wanted the life that was working at the hospital and in people’s homes. Helping families and patients through grieving, pain, and also moments of overflowing joy.
The new “normal” was playing out in front of my eyes and I either had to accept it and adapt, or sit back and disappear into the background. So I chose the new normal and put one foot in front of the other. That was my choice; the only one in my eyes…
This thing called life is a funny thing. It can be full of joy and it can be full of pain. It’s our choice whether we allow good or bad to continue to exist day after day. I had so many people cheering me on and I needed that support. I needed to be lifted up.